Ethics and informatics in the age of COVID-19: challenges and recommendations for public health organization and public policy.
Identifieur interne : 000075 ( Main/Exploration ); précédent : 000074; suivant : 000076Ethics and informatics in the age of COVID-19: challenges and recommendations for public health organization and public policy.
Auteurs : Vignesh Subbian [États-Unis] ; Anthony Solomonides [États-Unis] ; Melissa Clarkson [États-Unis] ; Vasiliki Nataly Rahimzadeh [États-Unis] ; Carolyn Petersen [États-Unis] ; Richard Schreiber [États-Unis] ; Paul R. Demuro [États-Unis] ; Prerna Dua [États-Unis] ; Kenneth W. Goodman [États-Unis] ; Bonnie Kaplan [États-Unis] ; Ross Koppel [États-Unis] ; Christoph U. Lehmann [États-Unis] ; Eric Pan [États-Unis] ; Yalini Senathirajah [États-Unis]Source :
- Journal of the American Medical Informatics Association : JAMIA [ 1527-974X ] ; 2021.
Abstract
The COVID-19 pandemic response in the United States has exposed significant gaps in information systems and processes that prevent timely clinical and public health decision-making. Specifically, the use of informatics to mitigate the spread of SARS-CoV-2, support COVID-19 care delivery, and accelerate knowledge discovery bring to the forefront issues of privacy, surveillance, limits of state powers, and interoperability between public health and clinical information systems. Using a consensus-building process, we critically analyze informatics-related ethical issues in light of the pandemic across 3 themes: (1) public health reporting and data sharing, (2) contact tracing and tracking, and (3) clinical scoring tools for critical care. We provide context and rationale for ethical considerations and recommendations that are actionable during the pandemic and conclude with recommendations calling for longer-term, broader change (beyond the pandemic) for public health organization and policy reform.
DOI: 10.1093/jamia/ocaa188
PubMed: 32722749
PubMed Central: PMC7454584
Affiliations:
- États-Unis
- Arizona, Californie, Connecticut, Floride, Illinois, Kentucky, Louisiane, Maryland, Minnesota, Pennsylvanie, Texas, État de New York
- Buffalo (New York), Pittsburgh, Stanford (Californie)
- Université Stanford, Université d'État de New York à Buffalo, Université de Pittsburgh
Links toward previous steps (curation, corpus...)
Le document en format XML
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xml:lang="en">Ethics and informatics in the age of COVID-19: challenges and recommendations for public health organization and public policy.</title><author><name sortKey="Subbian, Vignesh" sort="Subbian, Vignesh" uniqKey="Subbian V" first="Vignesh" last="Subbian">Vignesh Subbian</name><affiliation wicri:level="2"><nlm:affiliation>Department of Biomedical Engineering, The University of Arizona, Tucson, Arizona, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Department of Biomedical Engineering, The University of Arizona, Tucson, Arizona</wicri:regionArea><placeName><region type="state">Arizona</region></placeName></affiliation><affiliation wicri:level="2"><nlm:affiliation>Department of Systems and Industrial Engineering, The University of Arizona, Tucson, Arizona, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Department of Systems and Industrial Engineering, The University of Arizona, Tucson, Arizona</wicri:regionArea><placeName><region type="state">Arizona</region></placeName></affiliation></author><author><name sortKey="Solomonides, Anthony" sort="Solomonides, Anthony" uniqKey="Solomonides A" first="Anthony" last="Solomonides">Anthony Solomonides</name><affiliation wicri:level="2"><nlm:affiliation>NorthShore University HealthSystem, Evanston, Illinois, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>NorthShore University HealthSystem, Evanston, Illinois</wicri:regionArea><placeName><region type="state">Illinois</region></placeName></affiliation></author><author><name sortKey="Clarkson, Melissa" sort="Clarkson, Melissa" uniqKey="Clarkson M" first="Melissa" last="Clarkson">Melissa Clarkson</name><affiliation wicri:level="2"><nlm:affiliation>University of Kentucky, Lexington, Kentucky, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>University of Kentucky, Lexington, Kentucky</wicri:regionArea><placeName><region type="state">Kentucky</region></placeName></affiliation></author><author><name sortKey="Rahimzadeh, Vasiliki Nataly" sort="Rahimzadeh, Vasiliki Nataly" uniqKey="Rahimzadeh V" first="Vasiliki Nataly" last="Rahimzadeh">Vasiliki Nataly Rahimzadeh</name><affiliation wicri:level="4"><nlm:affiliation>Stanford University, Stanford, California, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Stanford University, Stanford, California</wicri:regionArea><placeName><region type="state">Californie</region><settlement type="city">Stanford (Californie)</settlement></placeName><orgName type="university">Université Stanford</orgName></affiliation></author><author><name sortKey="Petersen, Carolyn" sort="Petersen, Carolyn" uniqKey="Petersen C" first="Carolyn" last="Petersen">Carolyn Petersen</name><affiliation wicri:level="2"><nlm:affiliation>Mayo Clinic, Rochester, Minnesota, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Mayo Clinic, Rochester, Minnesota</wicri:regionArea><placeName><region type="state">Minnesota</region></placeName></affiliation></author><author><name sortKey="Schreiber, Richard" sort="Schreiber, Richard" uniqKey="Schreiber R" first="Richard" last="Schreiber">Richard Schreiber</name><affiliation wicri:level="2"><nlm:affiliation>Geisinger Health System, Camp Hill, Pennsylvania, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Geisinger Health System, Camp Hill, Pennsylvania</wicri:regionArea><placeName><region type="state">Pennsylvanie</region></placeName></affiliation></author><author><name sortKey="Demuro, Paul R" sort="Demuro, Paul R" uniqKey="Demuro P" first="Paul R" last="Demuro">Paul R. Demuro</name><affiliation wicri:level="2"><nlm:affiliation>Royal Palm Companies, Miami, Florida, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Royal Palm Companies, Miami, Florida</wicri:regionArea><placeName><region type="state">Floride</region></placeName></affiliation></author><author><name sortKey="Dua, Prerna" sort="Dua, Prerna" uniqKey="Dua P" first="Prerna" last="Dua">Prerna Dua</name><affiliation wicri:level="2"><nlm:affiliation>Louisiana Tech University, Ruston, Louisiana, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Louisiana Tech University, Ruston, Louisiana</wicri:regionArea><placeName><region type="state">Louisiane</region></placeName></affiliation></author><author><name sortKey="Goodman, Kenneth W" sort="Goodman, Kenneth W" uniqKey="Goodman K" first="Kenneth W" last="Goodman">Kenneth W. Goodman</name><affiliation wicri:level="2"><nlm:affiliation>University of Miami, Miami, Florida, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>University of Miami, Miami, Florida</wicri:regionArea><placeName><region type="state">Floride</region></placeName></affiliation></author><author><name sortKey="Kaplan, Bonnie" sort="Kaplan, Bonnie" uniqKey="Kaplan B" first="Bonnie" last="Kaplan">Bonnie Kaplan</name><affiliation wicri:level="2"><nlm:affiliation>Yale University, New Haven, Connecticut, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Yale University, New Haven, Connecticut</wicri:regionArea><placeName><region type="state">Connecticut</region></placeName></affiliation></author><author><name sortKey="Koppel, Ross" sort="Koppel, Ross" uniqKey="Koppel R" first="Ross" last="Koppel">Ross Koppel</name><affiliation wicri:level="2"><nlm:affiliation>University of Pennsylvania, Pennsylvania, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>University of Pennsylvania, Pennsylvania</wicri:regionArea><placeName><region type="state">Pennsylvanie</region></placeName></affiliation><affiliation wicri:level="4"><nlm:affiliation>University at Buffalo, The State University of New York, Buffalo, New York, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>University at Buffalo, The State University of New York, Buffalo, New York</wicri:regionArea><placeName><region type="state">État de New York</region><settlement type="city">Buffalo (New York)</settlement></placeName><orgName type="university">Université d'État de New York à Buffalo</orgName></affiliation></author><author><name sortKey="Lehmann, Christoph U" sort="Lehmann, Christoph U" uniqKey="Lehmann C" first="Christoph U" last="Lehmann">Christoph U. Lehmann</name><affiliation wicri:level="2"><nlm:affiliation>UT Southwestern Medical Center, Dallas, Texas, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>UT Southwestern Medical Center, Dallas, Texas</wicri:regionArea><placeName><region type="state">Texas</region></placeName></affiliation></author><author><name sortKey="Pan, Eric" sort="Pan, Eric" uniqKey="Pan E" first="Eric" last="Pan">Eric Pan</name><affiliation wicri:level="2"><nlm:affiliation>Westat Inc, Rockville, Maryland, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Westat Inc, Rockville, Maryland</wicri:regionArea><placeName><region type="state">Maryland</region></placeName></affiliation></author><author><name sortKey="Senathirajah, Yalini" sort="Senathirajah, Yalini" uniqKey="Senathirajah Y" first="Yalini" last="Senathirajah">Yalini Senathirajah</name><affiliation wicri:level="4"><nlm:affiliation>University of Pittsburgh, Pittsburgh, Pennsylvania, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>University of Pittsburgh, Pittsburgh, Pennsylvania</wicri:regionArea><placeName><region type="state">Pennsylvanie</region><settlement type="city">Pittsburgh</settlement></placeName><orgName type="university">Université de Pittsburgh</orgName></affiliation></author></analytic><series><title level="j">Journal of the American Medical Informatics Association : JAMIA</title><idno type="eISSN">1527-974X</idno><imprint><date when="2021" type="published">2021</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">The COVID-19 pandemic response in the United States has exposed significant gaps in information systems and processes that prevent timely clinical and public health decision-making. Specifically, the use of informatics to mitigate the spread of SARS-CoV-2, support COVID-19 care delivery, and accelerate knowledge discovery bring to the forefront issues of privacy, surveillance, limits of state powers, and interoperability between public health and clinical information systems. Using a consensus-building process, we critically analyze informatics-related ethical issues in light of the pandemic across 3 themes: (1) public health reporting and data sharing, (2) contact tracing and tracking, and (3) clinical scoring tools for critical care. We provide context and rationale for ethical considerations and recommendations that are actionable during the pandemic and conclude with recommendations calling for longer-term, broader change (beyond the pandemic) for public health organization and policy reform.</div></front></TEI><pubmed><MedlineCitation Status="In-Process" Owner="NLM"><PMID Version="1">32722749</PMID><DateRevised><Year>2021</Year><Month>01</Month><Day>22</Day></DateRevised><Article PubModel="Print"><Journal><ISSN IssnType="Electronic">1527-974X</ISSN><JournalIssue CitedMedium="Internet"><Volume>28</Volume><Issue>1</Issue><PubDate><Year>2021</Year><Month>01</Month><Day>15</Day></PubDate></JournalIssue><Title>Journal of the American Medical Informatics Association : JAMIA</Title><ISOAbbreviation>J Am Med Inform Assoc</ISOAbbreviation></Journal><ArticleTitle>Ethics and informatics in the age of COVID-19: challenges and recommendations for public health organization and public policy.</ArticleTitle><Pagination><MedlinePgn>184-189</MedlinePgn></Pagination><ELocationID EIdType="doi" ValidYN="Y">10.1093/jamia/ocaa188</ELocationID><Abstract><AbstractText>The COVID-19 pandemic response in the United States has exposed significant gaps in information systems and processes that prevent timely clinical and public health decision-making. Specifically, the use of informatics to mitigate the spread of SARS-CoV-2, support COVID-19 care delivery, and accelerate knowledge discovery bring to the forefront issues of privacy, surveillance, limits of state powers, and interoperability between public health and clinical information systems. Using a consensus-building process, we critically analyze informatics-related ethical issues in light of the pandemic across 3 themes: (1) public health reporting and data sharing, (2) contact tracing and tracking, and (3) clinical scoring tools for critical care. We provide context and rationale for ethical considerations and recommendations that are actionable during the pandemic and conclude with recommendations calling for longer-term, broader change (beyond the pandemic) for public health organization and policy reform.</AbstractText><CopyrightInformation>© The Author(s) 2020. Published by Oxford University Press on behalf of the American Medical Informatics Association. All rights reserved. For permissions, please email: journals.permissions@oup.com.</CopyrightInformation></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Subbian</LastName><ForeName>Vignesh</ForeName><Initials>V</Initials><AffiliationInfo><Affiliation>Department of Biomedical Engineering, The University of Arizona, Tucson, Arizona, USA.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Systems and Industrial Engineering, The University of Arizona, Tucson, Arizona, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Solomonides</LastName><ForeName>Anthony</ForeName><Initials>A</Initials><AffiliationInfo><Affiliation>NorthShore University HealthSystem, Evanston, Illinois, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Clarkson</LastName><ForeName>Melissa</ForeName><Initials>M</Initials><AffiliationInfo><Affiliation>University of Kentucky, Lexington, Kentucky, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Rahimzadeh</LastName><ForeName>Vasiliki Nataly</ForeName><Initials>VN</Initials><AffiliationInfo><Affiliation>Stanford University, Stanford, California, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Petersen</LastName><ForeName>Carolyn</ForeName><Initials>C</Initials><AffiliationInfo><Affiliation>Mayo Clinic, Rochester, Minnesota, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Schreiber</LastName><ForeName>Richard</ForeName><Initials>R</Initials><AffiliationInfo><Affiliation>Geisinger Health System, Camp Hill, Pennsylvania, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>DeMuro</LastName><ForeName>Paul R</ForeName><Initials>PR</Initials><AffiliationInfo><Affiliation>Royal Palm Companies, Miami, Florida, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Dua</LastName><ForeName>Prerna</ForeName><Initials>P</Initials><AffiliationInfo><Affiliation>Louisiana Tech University, Ruston, Louisiana, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Goodman</LastName><ForeName>Kenneth W</ForeName><Initials>KW</Initials><AffiliationInfo><Affiliation>University of Miami, Miami, Florida, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Kaplan</LastName><ForeName>Bonnie</ForeName><Initials>B</Initials><AffiliationInfo><Affiliation>Yale University, New Haven, Connecticut, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Koppel</LastName><ForeName>Ross</ForeName><Initials>R</Initials><AffiliationInfo><Affiliation>University of Pennsylvania, Pennsylvania, USA.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>University at Buffalo, The State University of New York, Buffalo, New York, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Lehmann</LastName><ForeName>Christoph U</ForeName><Initials>CU</Initials><AffiliationInfo><Affiliation>UT Southwestern Medical Center, Dallas, Texas, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Pan</LastName><ForeName>Eric</ForeName><Initials>E</Initials><AffiliationInfo><Affiliation>Westat Inc, Rockville, Maryland, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Senathirajah</LastName><ForeName>Yalini</ForeName><Initials>Y</Initials><AffiliationInfo><Affiliation>University of Pittsburgh, Pittsburgh, Pennsylvania, USA.</Affiliation></AffiliationInfo></Author></AuthorList><Language>eng</Language><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType><PublicationType UI="D013485">Research Support, Non-U.S. Gov't</PublicationType></PublicationTypeList></Article><MedlineJournalInfo><Country>England</Country><MedlineTA>J Am Med Inform Assoc</MedlineTA><NlmUniqueID>9430800</NlmUniqueID><ISSNLinking>1067-5027</ISSNLinking></MedlineJournalInfo><CitationSubset>IM</CitationSubset><KeywordList Owner="NOTNLM"><Keyword MajorTopicYN="Y">COVID-19</Keyword><Keyword MajorTopicYN="Y">contact tracing</Keyword><Keyword MajorTopicYN="Y">ethics</Keyword><Keyword MajorTopicYN="Y">privacy</Keyword><Keyword MajorTopicYN="Y">public health surveillance</Keyword></KeywordList></MedlineCitation><PubmedData><History><PubMedPubDate PubStatus="received"><Year>2020</Year><Month>05</Month><Day>11</Day></PubMedPubDate><PubMedPubDate PubStatus="accepted"><Year>2020</Year><Month>07</Month><Day>24</Day></PubMedPubDate><PubMedPubDate PubStatus="pubmed"><Year>2020</Year><Month>7</Month><Day>30</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="medline"><Year>2020</Year><Month>7</Month><Day>30</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="entrez"><Year>2020</Year><Month>7</Month><Day>30</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate></History><PublicationStatus>ppublish</PublicationStatus><ArticleIdList><ArticleId IdType="pubmed">32722749</ArticleId><ArticleId IdType="pii">5877430</ArticleId><ArticleId IdType="doi">10.1093/jamia/ocaa188</ArticleId><ArticleId IdType="pmc">PMC7454584</ArticleId></ArticleIdList></PubmedData></pubmed><affiliations><list><country><li>États-Unis</li></country><region><li>Arizona</li><li>Californie</li><li>Connecticut</li><li>Floride</li><li>Illinois</li><li>Kentucky</li><li>Louisiane</li><li>Maryland</li><li>Minnesota</li><li>Pennsylvanie</li><li>Texas</li><li>État de New York</li></region><settlement><li>Buffalo (New York)</li><li>Pittsburgh</li><li>Stanford (Californie)</li></settlement><orgName><li>Université Stanford</li><li>Université d'État de New York à Buffalo</li><li>Université de Pittsburgh</li></orgName></list><tree><country name="États-Unis"><region name="Arizona"><name sortKey="Subbian, Vignesh" sort="Subbian, Vignesh" uniqKey="Subbian V" first="Vignesh" last="Subbian">Vignesh Subbian</name></region><name sortKey="Clarkson, Melissa" sort="Clarkson, Melissa" uniqKey="Clarkson M" first="Melissa" last="Clarkson">Melissa Clarkson</name><name sortKey="Demuro, Paul R" sort="Demuro, Paul R" uniqKey="Demuro P" first="Paul R" last="Demuro">Paul R. Demuro</name><name sortKey="Dua, Prerna" sort="Dua, Prerna" uniqKey="Dua P" first="Prerna" last="Dua">Prerna Dua</name><name sortKey="Goodman, Kenneth W" sort="Goodman, Kenneth W" uniqKey="Goodman K" first="Kenneth W" last="Goodman">Kenneth W. Goodman</name><name sortKey="Kaplan, Bonnie" sort="Kaplan, Bonnie" uniqKey="Kaplan B" first="Bonnie" last="Kaplan">Bonnie Kaplan</name><name sortKey="Koppel, Ross" sort="Koppel, Ross" uniqKey="Koppel R" first="Ross" last="Koppel">Ross Koppel</name><name sortKey="Koppel, Ross" sort="Koppel, Ross" uniqKey="Koppel R" first="Ross" last="Koppel">Ross Koppel</name><name sortKey="Lehmann, Christoph U" sort="Lehmann, Christoph U" uniqKey="Lehmann C" first="Christoph U" last="Lehmann">Christoph U. Lehmann</name><name sortKey="Pan, Eric" sort="Pan, Eric" uniqKey="Pan E" first="Eric" last="Pan">Eric Pan</name><name sortKey="Petersen, Carolyn" sort="Petersen, Carolyn" uniqKey="Petersen C" first="Carolyn" last="Petersen">Carolyn Petersen</name><name sortKey="Rahimzadeh, Vasiliki Nataly" sort="Rahimzadeh, Vasiliki Nataly" uniqKey="Rahimzadeh V" first="Vasiliki Nataly" last="Rahimzadeh">Vasiliki Nataly Rahimzadeh</name><name sortKey="Schreiber, Richard" sort="Schreiber, Richard" uniqKey="Schreiber R" first="Richard" last="Schreiber">Richard Schreiber</name><name sortKey="Senathirajah, Yalini" sort="Senathirajah, Yalini" uniqKey="Senathirajah Y" first="Yalini" last="Senathirajah">Yalini Senathirajah</name><name sortKey="Solomonides, Anthony" sort="Solomonides, Anthony" uniqKey="Solomonides A" first="Anthony" last="Solomonides">Anthony Solomonides</name><name sortKey="Subbian, Vignesh" sort="Subbian, Vignesh" uniqKey="Subbian V" first="Vignesh" last="Subbian">Vignesh Subbian</name></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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